LibGuides: Chronic Illness: Palliative care

Key resources

Health Literacy and Palliative Care (2016) by Joe Alper (Ed.)
Call Number: SCU e-Book
ISBN: 0309380367
A practical guide to end of life care (2015) by Clair Sadler (Ed.)
Call Number: 616.029 PRAC

The Clinical Ethics Resource: Indigenous Australians---End of Life Care: Tool Kits and Protocols
Needs Assessment Tool: Progressive Disease (NAT:PD) User Guide
Used in both generalist and specialist settings, the Needs Assessment Tool: Progressive Disease (NAT: PD) can assist in matching the types and levels of need experienced by people with progressive chronic diseases (eg cancer, heart failure, COPD) and their caregivers with the most appropriate people or services to address those needs.
Palliative Care Australia: Advanced Care Planning Resources
Palliative Care Australia: The National Standards
The Palliative Care Handbook: Guidelines for Clinical Management and Symptom Control
Residential Aged Care Palliative Approach Toolkit
The PA Toolkit project aims to strengthen the capacity of residential aged care staff to deliver high quality, evidence-based care for residents by:
Providing training on how to use the PA Toolkit in the day-to-day provision of palliative care.
Developing new clinical, educational and management resources for inclusion in, and to support the implementation of, the PA Toolkit.

Global Atlas of Palliative Care at the End of Life/WHO
There is increased awareness of the need for palliative care for chronic diseases. However, there remains a huge unmet need for palliative care for chronic life-limiting health problems in most parts of the world. The purpose of this Atlas is to shine a light on the need for palliative care globally and to provide useful information for those wishing to increase access.
IAHPC List of Essential Practices in Palliative Care
The IAHPC List of Essential Practices in Palliative care may help define appropriate primary palliative care and improve the quality of care delivered globally. Further studies are needed to evaluate their uptake and impact.

Australian Government Department of Health: Palliative Care
What is meant by the term palliative care, when and where it is provided and by whom?

CareSearch Palliative Care Network
Provides a portal to look at the role, nature and sources of evidence and the application of evidence in practice in the area of palliative care.
International Association for Hospice and Palliative Care
IAHPC are dedicated to the promotion and development of palliative care throughout the world.
Palliative Care NSW
Palliative Care New South Wales is the peak body in NSW representing palliative care providers and those with an interest in palliative care.
Palliative Care Queensland
Palliative Care Queensland is an independent not-for-profit peak body representing palliative care providers, consumers and their families and those with an interest in palliative care in Queensland.
World Health Organisation. (2011). Patient safety. Using pulse oximeters. Tutorial 1 - the basics.
Worldwide Palliative Care Alliance
The Worldwide Palliative Care Alliance promotes universal access to affordable quality palliative care through the support of regional and national hospice and palliative care organisations.

These links below provide information relating to the use of Syringe Drivers:

Eastern Metropolitan Region Palliative Care Consortium [Victoria]. (2011). Syringe Driver Drug Compatibilities-Practice Guidelines.

Management of Subcutaneous Infusions in Palliative Care

The following video clips provide practical demonstrations on the use of Syringe Drivers:

How to insert a Saf-T-Intima device (2014) - 3 mins

Setting up a syringe driver in the community (2009) - 20 mins in total: Part 1; Part 2; Part 3

T34 Syringe driver instruction video for Oxfordshire (2015) - 4 mins

The following videos provide information and insights into the role of palliative care: